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From Awareness to Advocacy

Many students walk into school every day carrying more than a backpack—they carry chronic pain, fatigue, or conditions you can’t see. And most of the people around them don’t understand.

        What’s the Problem

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  • Invisible illnesses are often misunderstood

  • Students may be judged instead of supported

  • Schools lack chronic illness education

              Why It Matters

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  • Students struggle without recognition or support

  • Misunderstanding leads to stigma

  • Lack of awareness impacts health and success

          Our Solution

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  • Introduce legislation requiring South Carolina health classes to teach about invisible illnesses

  • Promote empathy and understanding

        What’s the Problem

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  • Invisible illnesses are often misunderstood

  • Students may be judged instead of supported

  • Schools lack chronic illness education

What Awareness Looks like in Action

  • Listening without judgment
  • Believing experiences
  • Supporting accommodations
  • Choosing empathy over assumptions
  • Challenging misconceptions
  • Promoting understanding

Awareness starts with action. Take the next step today.

Advocacy in Action: The Lived Experience

Abigail Grace Cooper

Miss High School America 2025 advocates for Juvenile Idiopathic Arthritis, sharing her journey to inspire others navigating chronic health challenges.

Tess Ferm

Miss America's Teen 2026 advocates for Food Allergies, creating awareness for the millions living with severe dietary restrictions and invisible medical risks.

Awareness Through Advocacy

Turning lived experiences into policies that protect and include.

Advocacy

One of Silent Strength's primary goals is to advance meaningful legislation that recognizes and supports students living with chronic and often invisible health conditions.
 

South Carolina already has a statewide framework for comprehensive health education. Its current high school health standards address disease prevention and health promotion, creating an existing educational structure that could be strengthened to include chronic and invisible illness awareness. South Carolina Department of Education

Why This Matters

young people ages 5–25 are estimated to live with a chronic condition or functional limitation — approximately 25 million young people nationwide. UCLA Health, 2025.

1 in 3 

states and the District of Columbia now have K–12 mental health education requirements, demonstrating a growing recognition of health education as an important part of the school curriculum. National Alliance on Mental Illness, 2025.

21 + DC

Our Legislative Goal

Build on South Carolina's existing health education framework by adding chronic and invisible illness awareness to high school health education.

We propose a dedicated unit that would help students:

✅ Understand what chronic and invisible illnesses are

✅ Recognize that serious health conditions are not always visible

✅ Understand how chronic illness can affect daily life, learning, and participation

✅ Challenge misconceptions and stigma surrounding invisible illness

✅ Respond with empathy, respect, and inclusion

Awareness begins with understanding.

school professionals participated in a study examining knowledge and beliefs about students with chronic illness. Researchers found that school professionals reported feeling least prepared to work with students with certain chronic conditions and concluded that more training and support is needed. Journal of School Health, 2018.

383

The U.S. Department of Education recognizes chronic illness as a potential hidden disability and notes that conditions such as diabetes, epilepsy, heart disease, and other chronic illnesses may not be readily apparent to teachers or classmates.

Hidden Disabilities

South Carolina State Flag

National Policy: Understanding the Bigger Picture

National initiatives help establish protections, access, and accommodations for individuals living with invisible illness. These initiative provide important context for what Silent Strength is doing in South Carolina

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H.R. 919 – Chronic Disease Flexible Coverage Act

Expands access to pre‑deductible coverage for chronic disease treatments.

Section 504 of the Rehabilitation Act of 1973

Ensures students with disabilities, including invisible illnesses, receive equal access through reasonable accommodations.

Invisible Illness: Patient‑Centered Innovation (LymeX)

Supports community‑driven solutions and removes barriers even for non‑visible conditions.

SSA Medical Continuing Disability Reviews (2025)

Improves federal oversight and speeds disability claim reviews.

Green Plant Leaf

From Awareness to Action

 

Change begins when we turn understanding into action—and use our voices to create a more informed, inclusive South Carolina.

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